Notions of support challenged by participatory research with adults with Asperger's syndrome

Jackie Ann Robinson

doi:10.1921/gpwk.v26i2.1034

Authors

Jackie Ann Robinson De Montfort University

DOI:

https://doi.org/10.1921/gpwk.v26i2.1034

Abstract

Abstract: The article discusses the findings of participatory research involving co-researchers with Asperger's syndrome. The findings of the research led to the development of a model of mutual understanding: the Triad of Understanding. The article discusses how the findings were arrived at and the implications for traditional notions of support.

Keywords: autism; Asperger's syndrome; participatory research; support

Author Biography

Jackie Ann Robinson, De Montfort University

Principal Lecturer in Social Work

References

Attwood. T. (2007) The Complete Guide to Asperger’s Syndrome. London: Jessica Kingsley

Bagatell, N. (2007) Orchestrating voices: Autism, identity and the power of discourse. Disability and Society, 22, 4, 413-416

Bogdashina, O. (2006) Theory of Mind and the Triad of Perspectives on Autism and Asperger Syndrome: A view from the bridge. London: Jessica Kingsley

Bryson, A. (2008) Social Research Methods (3rd ed.).New York: Oxford University Press

Denscombe initial ?(2007) The Good Researcher’s Guide, (3rd Ed.) Maidenhead: Open University Press

Department of Education and Science (2001) Educational Provision and Support for Person’s with Autistic Spectrum Disorders: The Report on the Task Force on Autism. [ Accessed 21 May 2014 at. http://www.sess.ie/sites/default/files/Autism%20Task%20Force%20Report.pdf]

Dyson, S. and Brown, B. (2006) Social Theory and Applied Health Research. Maidenhead: Open University Press

Grandin, T. (2006) Thinking in Pictures and other Reports from my Life with Autism. London: Bloomsbury

Greener, I. (2011) Designing Social Research: A guide for the bewildered. London: Sage

Layder, D. (2014) Doing Excellent Small Scale Research. London: Sage

MacLeod, A., Lewis, A. and Robertson, C. (2013) ‘CHARLIE: PLEASE RESPOND!’ Using a participatory methodology with individuals on the autism spectrum. International Journal of Research and Method in Education, doi.org/10.1080/1743727X.2013.776528, 407-420

Martin, J. (2014) Research with adults with Asperger’s syndrome: Participatory or emancipatory research?’ Qualitative Social Work March 2015 14, 2, 209-223 (first published on May 26, 2014)

Martin, J, Fox, K., MacGregor, D. and Hickman, L. (2014) People with Asperger's syndrome lead the way in how to work in a group. Groupwork, 24, 2, 63-79

Nind, M. (2011) Participatory data analysis: a step too far? Qualitative Research, 11, 349-363

Nind, M., Wiles, R.A., Bengry-Howells, A. and Grow, G.P. (2012) ‘Methodological Innovation and Research Ethics: Forces in Tension or Forces in Harmony? Qualitative Research, 1, 1-18. [Accessed 3 May 2014 at

http://api.ning.com/files/5SKEMBQoOE68fsHpDMfFItUDRq4M4H*fHKrKm*-wg2BKN9b1GhiIzXyfVw-PCRZyB8B3R7jRRafwOqLLHgeLqxptnnu-*0Rk/Methodoligical_Innovation__Research_Ethics.pdf ]

Nind, M. (2014) What is Inclusive Research. New York: Bloomsbury

Oliver, M. (1992) ‘Changing the Social Relations of Research Production?’ Disability, Handicap and Society, 7, 2, 101-114.

Richards, L. and Morse, J. (2007) Readme first for a user’s guide to qualitative methods, (2nd ed.). Thousand Oaks, CA: Sage

Robinson, J. ( 2015) Participatory Research with Adults with Asperger’s Syndrome: Using spatial analysis to explore how they make sense of their experience. (Unpublished PhD thesis) Leicester: De Montfort University, Slater-Walker, G. and Slater Walker, C. (2002) An Asperger Marriage London: Jessica Kingsley.

Smith, R., Monaghan, M. and Broad, B. (2002) Involving young people as co-researchers: Facing up to the methodological issues. Qualitative Social Work, 1, 191-207

Tew, J. (2008) Researching in partnership: Reflecting on a collaborative study with mental health service users into the longer term impact of compulsory admission to psychiatric hospital. Qualitative Social Work, 7, 3, 271-287

Willey, L. (1999) Pretending to be Normal. London: Jessica Kingsley

Williams, D. (1996) Autism: An inside-out-approach. London: Jessica Kingsley

Wing, L. (1991) The relationship between Asperger’s syndrome and Kanner’s autism. in U. Frith (Ed.) Autism and Asperger Syndrome. Cambridge: Cambridge University Press (pp. 93-121)