Quality of life as a basis for system change
DOI:
https://doi.org/10.1921/swssr.v25i1.2297Keywords:
quality of life, system change, mental health, person centred, extra-familial harmAbstract
his paper celebrates Peter Huxley’s contribution to placing quality of life at the centre of service planning and responses. Drawing on our research findings with 81 patients from Community Mental Health Teams, this paper argues that patient outcomes are improved when their voices are used to inform service design. Using the Manchester Short Assessment Quality of Life (MANSA), patients prioritised three of the eight domains: employment, financial stability and leisure activities. These findings were used to inform system change by addressing patient needs to increase their financial and social inclusion. This paper seeks to demonstrate the continued relevance of Peter’s work with reference to two examples: mental health needs arising from COVID-19 and the needs of criminally exploited children and young people. It concludes that Peter’s legacy provides the tools needed to ensure that services work together efficiently and effectively to address unmet needs and enhance quality of life
References
Andrews, F. and Withey, S.B. (1976) Social Indicators of Well-Being: Americans perceptions of quality of life. New York: Plenum Press.
Evans, S., Banerjee, S., Leese, M. and Huxley, P. (2007) The impact of mental illness on quality of life: a comparison of severe mental illness, common mental disorder and healthy population samples. Quality of Life Research, 16, 1, 17-29. https://doi.org/10.1007/s11136-006-9002-6
Evans, S. and Huxley, P. (2002) Studies of quality of life in the general population. International Review of Psychiatry. Abingdon, England, 14, 3, 203-211. https://doi.org/10.1080/09540260220145028
Evans, S., Huxley, P., Maxwell, N. and Huxley, K. (2014) System-level change in mental health services in North Wales. An observational study using systems thinking. International Journal of Social Psychiatry, 60, 4, 337-351. https://doi.org/10.1177/0020764013489672
Green, P. (2020) Risks to children and young people during covid-19 pandemic British Medical Journal, 369:m1669, https://doi.org/10.1136/bmj.m1669
Huxley, P., Evans, S., Madge, S., Webber, M., Burchardt, T., McDaid, D. and Knapp, M. (2012) Development of a social inclusion index to capture subjective and objective life domains (Phase II): Psychometric development study. Health Technology Assessment, 16, 1, 1-248. https://doi.org/10.3310/hta16010
Huxley, P., Ruud, T., Clausen, H., Ådnanes, M., Poole, R., Siqveland, J., Robinson, C., Nafees, S., and Krayer, A. (2018). Measurement characteristics of the Manchester Short Assessment of Quality of Life (MANSA): A systematic review. (CRD42018114594 ed.) (NIHR PROSPERO). NIHR PROSPERO (International Prospective Register of Systematic Reviews). https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42018114594
Huxley, P. and Thornicroft, G. (2003) Social inclusion, social quality and mental illness. The British Journal of Psychiatry, 182, 4, 289-290. https://doi.org/10.1192/bjp.182.4.289
Maxwell, N., Wallace, C., Cummings, A., Bayfield, H. and Morgan, H. (2019) A Systematic Map and Synthesis Review of Child Criminal Exploitation. Accessed September 2023 at [https://orca.cardiff.ac.uk/id/eprint/131950/1/Child%20Criminal%20Exploitation%20Report%20Final.pdf]
Maxwell, N., Williams, A., Ablitt, J., Bezeczky, Z., Thompson, S. and Crowley, A. (2022) Serious Organised Crime Early Intervention Service: Interim evaluation report. Accessed September 2023 at [https://cascadewales.org/wp-content/uploads/sites/3/2023/06/SOCEIS-Evaluation-2023.pdf]
Priebe, S., Huxley, P., Knight, S. and Evans, S. (1999) Application and results of the manchester short assessment of quality of life (Mansa). The International Journal of Social Psychiatry, 45, 1, 7-12. https://doi.org/10.1177/002076409904500102
Schneider, J., Wooff, D., Carpenter, J., Brandon, T. and McNiven, F. (2002) Community mental healthcare in England: associations between service organisation and quality of life: community mental healthcare. Health & Social Care in the Community, 10, 6, 423-434. https://doi.org/10.1046/j.1365-2524.2002.00394.x