Measuring quality of life of people with severe mental illness: Evaluation of the Dutch version of the Manchester Short Assessment of Quality of Life (MANSA) in three different populations and a look into innovative opportunitiesMeasuring quality of life
DOI:
https://doi.org/10.1921/swssr.v25i1.2301Keywords:
Quality of Life, MANSA, severe mental illness, psychometric propertiesAbstract
Purpose. The Manchester Short Assessment of Quality of Life (MANSA; Priebe et al., 1999) is one of the most widely used QoL-measures in psychiatry. We aimed to investigate the psychometric properties of the Dutch version of the MANSA in a broad sample of people with severe mental illnesses (SMI). Method. QoL-data from three studies were available (total n = 806). Internal consistency and construct validity were assessed. Furthermore, it was investigated whether the 12 subjective MANSA-items were capable of discriminating between specific psychiatric disorders. Results. Cronbach’s alpha ranges from 0.78 to 0.85; overall convergent and divergent validity of the MANSA is good. For people with SMI, their financial situation, mental health and life as whole are the most important QoL-domains. Conclusions. The psychometric properties of the MANSA are good and the instrument can be used to discriminate between important QoL domains within people with SMI.
References
Ådnanes, M., Kalseth, J., Ose, S.O., Ruud, T., Rugkåsa, J. and Puntis, S. (2019) Quality of life and service satisfaction in outpatients with severe or non-severe mental illness diagnoses. Quality of Life Research, 28, 3, 713-724. https://doi.org/10.1007/s11136-018-2039-5
Andresen, R., Caputi, P. and Oades, L.G. (2000) Interrater reliability of the camberwell assessment of need short appraisal schedule. The Australian and New Zealand Journal of Psychiatry, 34, 5, 856-861. https://doi.org/10.1080/j.1440-1614.2000.00814.x
Angermeyer, M.C. and Dietrich, S. (2006) Review article: public beliefs about and attitudes towards people with mental illness: a review of population studies. Acta Psychiatrica Scandinavica, 113, 3, 163-179. https://doi.org/10.1111/j.1600-0447.2005.00699.x
Awad, A.G. and Voruganti, L.N.P. (2012) Measuring quality of life in patients with schizophrenia: an update. PharmacoEconomics, 30, 3, 183-195. https://doi.org/10.2165/11594470-000000000-00000
Bitter, N.A., Roeg, D.P.K., van Nieuwenhuizen, C. and van Weeghel, J. (2016) Identifying profiles of service users in housing services and exploring their quality of life and care needs. BMC Psychiatry, 16, 1, 419-419. https://doi.org/10.1186/s12888-016-1122-0
Björkman, T. and Svensson, B. (2005) Quality of life in people with severe mental illness: reliability and validity of the Manchester Short Assessment of Quality of Life (MANSA). Nordic Journal of Psychiatry, 59, 4. 302 6.
Boevink, W.A., Wolf, J.R.L.M., Van Nieuwenhuizen, C. and Schene, A.H. (1995) Kwaliteit van leven van langdurig van ambulante zorg afhankelijke psychiatrische patienten; een conceptuele verkenning. Tijdschrift voor Psychiatrie, 37, 2, 97-110.
Buitenweg, D.C., Bongers, I.L., van de Mheen, D., van Oers, H.A.M. and van Nieuwenhuizen, C. (2018a) Subjectively different but objectively the same? Three profiles of QoL in people with severe mental health problems. Quality of Life Research, 27, 11, 2965-2974. https://doi.org/10.1007/s11136-018-1964-7
Buitenweg, D.C., Bongers, I.L., Mheen, D., Oers, H.A.M. and Van Nieuwenhuizen, C. (2018b) Worth a thousand words? Visual concept mapping of the quality of life of people with severe mental health problems. International Journal of Methods in Psychiatric Research, 27, 3, e1721-n/a. https://doi.org/10.1002/mpr.1721
Buitenweg, D.C., Bongers, I.L., Van De Mheen, D., Van Oers, H.A.M. and Van Nieuwenhuizen, C. (2019) Cocreative development of the QoL-ME: a visual and personalized quality of life assessment app for people with severe mental health problems. JMIR Mental Health, 21, 3, e12378-e12378. https://doi.org/10.2196/12378
Buitenweg, D.C., van de Mheen, D., Grund, J.-P., van Oers, H.A.M., and van Nieuwenhuizen, Ch. (2020) What’s in it for me? Qualitative evaluation of the QoLME, a visual and personalized quality of life assessment app for people with severe mental health problems. JMIR Mental Health, 12, 7. https://doi.org/10.2196/19593
Buitenweg, D.C., van de Mheen, D., van Oers, H.A.M. and van Nieuwenhuizen, C. (2022) Psychometric properties of the QoL-ME: a visual and personalized quality of life assessment app for people with severe mental health problems. Frontiers in Psychiatry, 12, 789704-789704. https://doi.org/10.3389/fpsyt.2021.789704
Carpinello, S.E., Knight, E.L., Markowitz, F.E. and Pease, E.A. (2000) The development of the mental health confidence scale: a measure of self-efficacy in individuals diagnosed with mental disorders. Psychiatric Rehabilitation Journal, 23, 3, 236-243. https://doi.org/10.1037/h0095162
Cohen, J. (1988) Statistical Power Analysis for the Behavioral Sciences (2nd edition). New York: Lawrence Erlbaum Associates.
Dehn, L.B., Beblo, T., Richter, D., Wienberg, G., Kremer, G., Steinhart, I. and Driessen, M. (2022) Effectiveness of supported housing versus residential care in severe mental illness: a multicenter, quasi-experimental study. Social Psychiatry and Psychiatric Epidemiology, 57, 5, 927-937. https://doi.org/10.1007/s00127-021-02214-6
Depla, M.F.I.A., de Graaf, R., van Weeghel, J. and Heeren, T.J. (2005) The role of stigma in the quality of life of older adults with severe mental illness. International Journal of Geriatric Psychiatry, 20, 2, 146-153. https://doi.org/10.1002/gps.1264
Eack, S.M. and Newhill, C.E. (2007) Psychiatric symptoms and quality of life in schizophrenia: a meta-analysis. Schizophrenia Bulletin, 33, 5, 1225-1237. https://doi.org/10.1093/schbul/sbl071
Eklund, L., Gunnarsson, A.B., Jansson, J.-Å., Pooremamali, P. and Eklund, M. (2021) A cross-sectional study addressing the importance of work and other everyday activities for well-being among people with mental illness: does additional vulnerability matter? BMC Psychiatry, 21, 1, 1-383. https://doi.org/10.1186/s12888-021-03388-8
Färdig, R., Lewander, T., Melin, L., Folke, F. and Fredriksson, A. (2011) A randomized controlled trial of the illness management and recovery program for persons with schizophrenia. Psychiatric Services, 62, 6, 606-612. https://doi.org/10.1176/ps.62.6.pss6206_0606
Geerts, K., Bongers, I., Buitenweg, D. and van Nieuwenhuizen, C. (2020) Quality of life of people with severe mental health problems: Testing an interactive model. International Journal of Environmental Research and Public Health, 17, 11, 3866. https://doi.org/10.3390/ijerph17113866
Herth, K. (1992) Abbreviated instrument to measure hope: development and psychometric evaluation. Journal of Advanced Nursing, 17, 10, 1251-1259. https://doi.org/10.1111/j.1365-2648.1992.tb01843.x
Hsieh, C. (2014) Throwing the baby out with the bathwater: evaluation of domain importance weighting in quality of life measurements. Social Indicators Research, 119, 1, 483-493. https://doi.org/10.1007/s11205-013-0500-y
Katschnig, H., Freeman, H., and Sartorius, N. (2005) Quality of Life in Mental Disorders (2nd edition). New York: Wiley and Sons.
Kilbourne, A.M., Beck, K., Spaeth-Rublee, B., Ramanuj, P., O’Brien, R.W., Tomoyasu, N. and Pincus, H.A. (2018) Measuring and improving the quality of mental health care: a global perspective. World Psychiatry, 17, 1, 30-38. https://doi.org/10.1002/wps.20482
Landolt, K., Rössler, W., Burns, T., Ajdacic-Gross, V., Galderisi, S., Libiger, J., Naber, D., Derks, E.M., Kahn, R.S. and Fleischhacker, W.W. (2012) The interrelation of needs and quality of life in first-episode schizophrenia. European Archives of Psychiatry and Clinical Neuroscience, 262, 3, 207-216. https://doi.org/10.1007/s00406-011-0275-6
Lehman, A.F. (1997) Instruments for measuring quality of life in mental illnesses. in H. Katschnig, H. Freeman and N. Sartorius (Eds.) Quality of Life in Mental Disorders. New York: Wiley & Sons (pp. 79-94)..
Link, B., Castille, D.M. and Stuber, J. (2008) Stigma and coercion in the context of outpatient treatment for people with mental illnesses. Social Science & Medicine (1982), 67, 3, 409-419.
Maathuis, I., Niezen, M., Buitenweg, D., Bongers, I.L. and van Nieuwenhuizen, C. (2020) Exploring human values in the design of a web-based QoL-instrument for people with mental health problems: a value sensitive design approach. Science and Engineering Ethics, 26, 2, 871-898. https://doi.org/10.1007/s11948-019-00142-y
Muller, A.E. (2020) A systematic review of quality of life assessments of offenders. International Journal of Offender Therapy and Comparative Criminology, 64, 13-14, 1364-1397. https://doi.org/10.1177/0306624X19881929
Nugter, M.A., and Teer, W. (2011) The use of outcome measures in long term psychiatry [Het gebruik van meetinstrumenten in de langdurende psychiatrie]. in V. J. A. Buwalda, M. A. Nugter, J. A. Swinkels and C. L. Mulder (Eds.) Practice book ROM in Mental Health Care: A guidance for the use and implementation of outcome measures [Praktijkboek ROM in de ggz; een leidraad voor gebruik en implementatie van meetinstrumenten]. Utrecht: De Tijdstroom (pp.87-102.
Nugter, M.A., Engelsbel, F., Bähler, M., Keet, R. and van Veldhuizen, R. (2016) Outcomes of FLEXIBLE Assertive Community Treatment (FACT) implementation: a prospective real life study. Community Mental Health Journal, 52, 8, 898-907. https://doi.org/10.1007/s10597-015-9831-2
Oliver, J.P.J., Huxley, P., Bridges, K., and Mohamad, H. (1996) Quality of Life and Mental Health Services. London: Routledge.
Oliver, J.P.J., Huxley, P.J., Priebe, S. and Kaiser, W. (1997) Measuring the quality of life of severely mentally ill people using the Lancashire Quality of Life Profile. Social Psychiatry and Psychiatric Epidemiology, 32, 2, 76-83. https://doi.org/10.1007/BF00788924
Petkari, E., Giacco, D. and Priebe, S. (2020) Factorial structure of the Manchester Short Assessment of Quality of Life in patients with schizophrenia-spectrum disorders. Quality of Life Research, 29, 3, 833–841. https://doi.org/10.1007/s11136-019-02356-w
Porensky, E.K., Dew, M.A., Karp, J.F., Skidmore, E., Rollman, B.L., Shear, M.K. and Lenze, E.J. (2009) The burden of late-life generalized anxiety disorder: effects on disability, health-related quality of life, and healthcare utilization. The American Journal of Geriatric Psychiatry, 17, 6, 473-482. https://doi.org/10.1097/JGP.0b013e31819b87b2
Priebe, S., Huxley, P., Knight, S. and Evans, S. (1999) Application and results of the manchester short assessment of quality of life (Mansa). The International Journal of Social Psychiatry, 45, 1, 7-12. https://doi.org/10.1177/002076409904500102
Priebe, S., McCabe, R., Bullenkamp, J., Hansson, L., Lauber, C., Martinez-Leal, R., Rossler, W., Salize, H., Svennson, B., Torres-Gonzalez, F., Van Den Brink, R., Wiersma, D. and Wright, D.J. (2007) Structured patient clinician communication and 1-year outcome in community mental healthcare: cluster randomised controlled trial. British Journal of Psychiatry, 191, 5, 420-426. https://doi.org/10.1192/bjp.bp.107.036939
Priebe, S., Reininghaus, U., McCabe, R., Burns, T., Eklund, M., Hansson, L., Junghan, U., Kallert, T., van Nieuwenhuizen, C., Ruggeri, M., Slade, M. and Wang, D. (2010) Factors influencing subjective quality of life in patients with schizophrenia and other mental disorders: a pooled analysis. Schizophrenia Research, 121, 1, 251-258. https://doi.org/10.1016/j.schres.2009.12.020
Priebe, S., Barnicot, K., McCabe, R., Kiejna, A., Nawka, P., Raboch, J., Schützwohl, M. and Kallert, T. (2011a) Patients’ subjective initial response and the outcome of inpatient and day hospital treatment. European Psychiatry, 26, 7, 408-413. https://doi.org/10.1016/j.eurpsy.2010.03.009
Priebe, S., Katsakou, C., Yeeles, K., Amos, T., Morriss, R., Wang, D. and Wykes, T. (2011b) Predictors of clinical and social outcomes following involuntary hospital admission: a prospective observational study. European Archives of Psychiatry and Clinical Neuroscience, 261, 5, 377-386. https://doi.org/10.1007/s00406-010-0179-x
Priebe, S., Golden, E., McCabe, R. and Reininghaus, U. (2012) Patient-reported outcome data generated in a clinical intervention in community mental health care - psychometric properties. BMC Psychiatry, 12, 1, 113–113. https://doi.org/10.1186/1471-244X-12-113
Rapkin, B.D. and Schwartz, C.E. (2019) Advancing quality-of-life research by deepening our understanding of response shift: a unifying theory of appraisal. Quality of Life Research, 28, 10, 2623-2630. https://doi.org/10.1007/s11136-019-02248-z
Reininghaus, U., McCabe, R., Burns, T., Croudace, T. and Priebe, S. (2012) The validity of subjective quality of life measures in psychotic patients with severe psychopathology and cognitive deficits: an item response model analysis. Quality of Life Research, 21, 2, 237-246. https://doi.org/10.1007/s11136-011-9936-1
Santesteban-Echarri, O., Paino, M., Rice, S., González-Blanch, C., McGorry, P., Gleeson,
J. and Alvarez-Jimenez, M. (2017) Predictors of functional recovery in first-episode
psychosis: a systematic review and meta-analysis of longitudinal studies. Clinical
Psychology Review, 58(1), 59–75. https://doi.org/10.1016/j.cpr.2017.09.007
Sarma, S.I. and Byrne, G.J. (2013) Relationship between anxiety and quality of life in
older mental health patients: anxiety and quality of life. Australasian Journal on Ageing,
(3), 201–204. https://doi.org/10.1111/ajag.12102
Siette, J., Knaggs, G.T., Zurynski, Y., Ratcliffe, J., Dodds, L. and Westbrook, J. (2021) Systematic review of 29 self-report instruments for assessing quality of life in older adults receiving aged care services. BMJ Open, 11, 11, e050892-e050892. https://doi.org/10.1136/bmjopen-2021-050892
Slade, M., Leese, M., Cahill, S., Thornicroft, G. and Kuipers, E. (2005) Patient-rated mental health needs and quality of life improvement. The British Journal of Psychiatry, 187, 3, 256-261. https://doi.org/10.1192/bjp.187.3.256
Slade, M., McCrone, P., Kuipers, E., Leese, M., Cahill, S., Parabiaghi, A.,... and Thornicroft, G. (2006) Use of standardised outcome measures in adult mental health services: randomised controlled trial. The British Journal of Psychiatry, 189, 4, 330-336. https://doi.org/10.1192/bjp.bp.105.015412
Sprangers, M.A.G. and Schwartz, C.E. (2008) Reflections on changeability versus stability of health-related quality of life: distinguishing between its environmental and genetic components. Health and Quality of Life Outcomes, 6, 1, 89-89. https://doi.org/10.1186/1477-7525-6-89
Tan, E.J. and Rossell, S.L. (2016) Comparing how co-morbid depression affects individual domains of functioning and life satisfaction in schizophrenia. Comprehensive Psychiatry, 66, 53-58. https://doi.org/10.1016/j.comppsych.2015.12.007
The WHOQOL Group. (1998) Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological Medicine, 28, 3, 551-558.
VanderZee, K.I., Sanderman, R., Heyink, J.W. and De Haes, H. (1996) Psychometric qualities of the RAND 36-item health survey 1.0: a multidimensional measure of general health status. International Journal of Behavioral Medicine, 3, 2, 104-122. https://doi.org/10.1207/s15327558ijbm0302_2
Van Eck, R.M., Burger, T.J., Vellinga, A., Schirmbeck, F. and de Haan, L. (2018) The relationship between clinical and personal recovery in patients with schizophrenia spectrum disorders: a systematic review and meta-analysis. Schizophrenia Bulletin, 44, 3, 631-642. https://doi.org/10.1093/schbul/sbx088
van Gestel-Timmermans, H., Brouwers, E.P.M., van Assen, M.A.L.M. and van Nieuwenhuizen, C. (2012) Effects of a peer-run course on recovery from serious mental illness: a randomized controlled trial. Psychiatric Services, 63, 1, 54-60. https://doi.org/10.1176/appi.ps.201000450
Van Gestel-Timmermans, J.A.W.M., Brouwers, E.P.M. and van Nieuwenhuizen, C. (2010a) Recovery Is Up to You, a peer-run course. Psychiatric Services, 61, 9, 944-945. https://doi.org/10.1176/ps.2010.61.9.944a
Van Gestel-Timmermans, H., Van Den Bogaard, J., Brouwers, E., Herth, K. and Van Nieuwenhuizen, C. (2010b) Hope as a determinant of mental health recovery: a psychometric evaluation of the Herth Hope Index-Dutch version. Scandinavian Journal of Caring Sciences, 24, s1, 67-74. https://doi.org/10.1111/j.1471-6712.2009.00758.x
Vanier, A., Oort, F.J., McClimans, L., Ow, N., Gulek, B.G., Böhnke, J.R., Sprangers, M., Sébille, V. and Mayo, N. (2021) Response shift in patient-reported outcomes: definition, theory, and a revised model. Quality of Life Research, 30, 12, 3309-3322. https://doi.org/10.1007/s11136-021-02846-w
Van Kessel, P. (2011) Patients with a Severe Mental Illness in the East Brabant region: Quality of life and psychosocial functioning [Patienten met een ernstige psychiatrische aandoening in de regio Oost-Brabant: kwaliteit van leven en psychosociaal functioneren]. Eindhoven: Fontys Hogeschool..
Van Krugten, F.C.W., Feskens, K., Busschbach, J.J.V., Hakkaart-van Roijen, L. and Brouwer, W.B.F. (2021) Instruments to assess quality of life in people with mental health problems: a systematic review and dimension analysis of generic, domain- and disease-specific instruments. Health and Quality of Life Outcomes, 19, 1, 1-249. https://doi.org/10.1186/s12955-021-01883-w
Van Nieuwenhuizen, C. and Nijman, H. (2009) Qualify of life of forensic psychiatric inpatients. International Journal of Forensic Mental Health, 8, 1, 9-15. https://doi.org/10.1080/14999010903014671
Van Nieuwenhuizen, Ch., and Schene, A.H. (1997) Measuring the quality of life of clients with severe metal illness: a review of instruments. Psychiatric Rehabilitation Journal, 20, 4, 33-41.
Van Nieuwenhuizen, Ch., Schene, A., Boevink, W. and Wolf, J. (1998) The Lancashire
quality of life profile: first experiences in the Netherlands. Community Mental Health
Journal, 34(5), 513-524.
Van Nieuwenhuizen, C., Schene, A.H., Koeter, M.W.J. and Huxley, P.J. (2001) The Lancashire quality of life profile: Modification and psychometric evaluation. Social Psychiatry and Psychiatric Epidemiology, 36, 1, 36-44. https://doi.org/10.1007/s001270050288
Van Nieuwenhuizen, Ch., Janssen-de Ruijter, E.A.W. and Nugter, M. (2017) Handleiding
Manchester Short Assessment of Quality of Life (MANSA). Eindhoven: Stichting QoLM.
Vatne, S. and Bjørkly, S. (2008) Empirical evidence for using subjective quality of life as an outcome variable in clinical studies. A meta-analysis of correlates and predictors in persons with a major mental disorder living in the community. Clinical Psychology Review, 28, 5, 869-889. https://doi.org/10.1016/j.cpr.2008.01.001
Whitley, R. and Drake, R.E. (2010) Recovery: a dimensional approach. Psychiatric Services, 61, 12, 1248-1250. https://doi.org/10.1176/ps.2010.61.12.1248
Wing, J., Beevor, A., Curtis, R., Park, S., Hadden, S. and Burns, A. (1998) Health of the Nation Outcome Scales (HoNOS). Research and development. British Journal of Psychiatry, 172, 1, 11-18. https://doi.org/10.1192/bjp.172.1.11
Wu, C.-H., Yang, C.-T. and Huang, L.-N. (2014) On the predictive effect of multidimensional importance-weighted quality of life scores on overall subjective well-being. Social Indicators Research, 115, 3, 933-943. https://doi.org/10.1007/s11205-013-0242-x